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Drawing on research evidence, logical analysis and his own experience, Tom Kitwood examines the subject of dementia. Breaking new ground, Kitwood scrutinises and reappraises many of the older ideas concerning dementia.
The original Dementia Reconsidered: The Person Comes First by Tom Kitwood was published by Open University Press in 1997. It was a seminal text in the field of dementia studies and is still cited and referenced as core reading on person-centred dementia care. Tom died unexpectedly, just 12 months after the book was published. This book continues to inspire many people to challenge simplistic paradigms about dementia. Since the original book was written, however, there have been many changes in our understanding of dementia. The editor of this new edition, Dawn Brooker was mentored by Tom Kitwood. She has drawn together a remarkable group of writers to provide a commentary on Kitwood’s work. This new edition reproduces the original chapters but provides extra content from subject experts to update the book to a contemporary level. Dementia Reconsidered Re-visited is an ideal main text or supplementary text for all those studying or working in nursing, medicine, psychiatry, psychology, occupational therapy, social work, adult education, gerontology and health and social care more generally. “This important book does three things. It brings to a new generation the insight and vision of Tom Kitwood. It highlights the remarkable progress we have made in recent years. But most important of all it reminds us what still needs to be done if we are to fully respect the rights of people with dementia and their family care-givers. Kitwood inspired Alzheimer’s Society to knit together research, care, and societal change. We are now re-inspired to make sure all progress is evidenced and evaluated for its impact. We must realise the enormous opportunities the digital age offers people affected by dementia but in doing so constantly listen to and learn from their many and varied voices across nations and cultures.” Jeremy Hughes CBE, Chief Executive, Alzheimer's Society, UK
"For some years now, Tom Kitwood's work on dementia care has stood out as the most important, innovative and creative development in a field that has for too long been neglected. This book is a landmark in dementia care; it brings together, and elaborates on, Kitwood's theory of dementia and of person-centred care in an accessible fashion, that will make this an essential source for all working and researching in the field of dementia care." Robert Woods, Professor of Clinical Psychology, University of Wales "Over the last ten years or so Tom Kitwood has made a truly remarkable contribution to our understanding of dementia, and to raising expectations of what can be achieved with empathy and skill. This lucid account of his thinking and work will communicate his approach to a yet wider audience. It is to be warmly welcomed." Mary Marshall, Director of the Dementia Services Development Centre, University of Stirling * What is the real nature of the dementing process? * What might we reasonably expect when dementia care is of very high quality? * What is required of organizations and individuals involved in dementia care? Tom Kitwood breaks new ground in this book. Many of the older ideas about dementia are subjected to critical scrutiny and reappraisal, drawing on research evidence, logical analysis and the author's own experience. The unifying theme is the personhood of men and women who have dementia - an issue that was grossly neglected for many years both in psychiatry and care practice. Each chapter provides a definitive statement on a major topic related to dementia, for example: the nature of 'organic mental impairment', the experience of dementia, the agenda for care practice, and the transformation of the culture of care. While recognizing the enormous difficulties of the present day, the book clearly demonstrates the possibility of a better life for people who have dementia, and comes to a cautiously optimistic conclusion. It will be of interest to all professionals involved in dementia care or provision, students on courses involving psychogeriatrics or social work with older people, and family carers of people with dementia. Key features: * One of the few attempts to present the whole picture. * Very readable - many real-life illustrations. * Offers a major alternative to the 'medical model' of dementia. * Tom Kitwood's work on dementia is very well known
Reconsidering Dementia Narratives explores the role of narrative in developing new ways of understanding, interacting with, and caring for people with dementia. It asks how the stories we tell about dementia – in fiction, life writing and film – both reflect and shape the way we think about this important condition. Highlighting the need to attend to embodied and relational aspects of identity in dementia, the study further outlines ways in which narratives may contribute to dementia care, while disputing the idea that the modes of empathy fostered by narrative necessarily bring about more humane care practices. This cross-medial analysis represents an interdisciplinary approach to dementia narratives which range across auto/biography, graphic narrative, novel, film, documentary and collaborative storytelling practices. The book aims to clarify the limits and affordances of narrative, and narrative studies, in relation to an ethically driven medical humanities agenda through the use of case studies. Answering the key question of whether dementia narratives align with or run counter to the dominant discourse of dementia as ‘loss of self’, this innovative book will be of interest to anyone interested in dementia studies, ageing studies, narrative studies in health care, and critical medical humanities.
"The book will be valuable for undergraduate and postgraduate students, researchers and lecturers involved in the field of dementia care and the health-care sciences. Furthermore, it provides a useful resource for clinicians who wish to explore their understanding of 'personhood', person-centred care and the nature of Kitwood's critical appraisal of how 'care' should be constructed and delivered." Ageing and Society "Baldwin and Capstick have produced an honest appraisal that is undeniably a reader and critical commentary, and have not shirked from any responsibilities. ... This paperback would serve two distinct strands of readership equally well - those coming afresh to dementia care, or practitioners steeped in the concepts, who are looking to reanalyse and consider future developments. As such, it is difficult to underestimate its value." Nursing in Practice How does Kitwood’s work contribute to our understanding of ‘the dementing process’ and the essentials of quality care? How was Kitwood’s thinking about dementia influenced by the wider context of his work in theology, psychology and biochemistry? What is the relevance today of key themes and issues in Kitwood’s work? Tom Kitwood was one of the most influential writers on dementia of the last 20 years. Key concepts and approaches from his work on person-centred care and well-being in dementia have gained international recognition and shaped much current thinking about practice development. The complexities of Kitwood’s work and the development of his thinking over time have, however, received less attention. This Reader brings together twenty original publications by Kitwood which span the entire period of his writing on dementia, and the different audiences for whom he wrote. Almost ten years after Kitwood’s death, it is now timely to review his contribution to the field of dementia studies in the light of more recent developments and from a critical and interdisciplinary perspective. The introduction to this Reader summarises and problematises some of the key characteristics of Kitwood’s writing. Each of the four themed sections begins with a commentary offering a balanced consideration of the strengths of Kitwood’s work, but also of its limitations and oversights. The Reader also includes a biography and annotated bibliography. Tom Kitwood on Dementia: A Reader and Critical Commentary is key reading for students of social work or mental health nursing, with an interest in dementia care. Professionals working with people with dementia will also find it invaluable. Additional Contributors: Habib Chaudhury, Deborah O’Connor, Alison Phinney, Barbara Purves, Ruth Bartlett.
The aim of the book is to extend understanding and knowledge of the lived experience of dementia through analysis of current research and in-depth conversations about dementia with a range of people living with the condition in the UK. It draws upon previous work on the “the experience of dementia” in the book Dementia Reconsidered – Revisited, 2nd edition, alongside an exploration of key concepts of Tom Kitwood’s original text. A key aim and unique feature of the book is to give a voice to people with dementia and to link this with issues in dementia care, frameworks, policy and practice.
Providing people with dementia with opportunities to engage in creative activity can play a crucial role in maintaining and enhancing communication, and in reinforcing personhood and identity. This thoughtful book describes how people with dementia, and the people who work with and care for them, can foster and develop a creative approach, and provides rich and varied ideas for creative activities. The authors explore the concept of creativity - what exactly it is, its particular relevance for people with dementia and how to get into the creative 'flow'. They introduce a range of creative art forms, including poetry and story-telling, collage, drama, music-making, photography, textiles and working with wood and metal, and suggest possibilities for employing them in a range of settings, and with people of all abilities. Consideration is given to the practicalities of facilitating such creative work, including how to organise and run sessions, how to involve people with dementia and their carers, and how to reflect upon the experience. Practice examples are included throughout the book, as well as the comments and observations of people with dementia, and many examples of the artwork and poetry the authors have created with people with dementia over the years. Brimming with ideas, suggestions and helpful guidance, this is an essential resource for all those who work with people with dementia, and an inspiring read for people with dementia and their families.
Offering an inter-disciplinary approach to spirituality and personhood in dementia care, the contributors to this book are leading practitioners and researchers in the field. They provide both a theoretical structure and a practical understanding of the essential role that spirituality can play in the affirmation of personhood and identity.
Your needs as a caregiver are just as important as those your family member with Alzheimer's Disease or dementia. This book will provide just the insight and guidance you need. Caregiving for a loved one with Alzheimer's disease or dementia is hard. It's hard whether you're caring for your spouse, parent, grandparent, sibling, other family member, or friend. Even if you had an extra ten hours each day to do it, it's hard to manage all the problems that come with dementia. And caring for a loved one with dementia can sometimes feel like a long, lonely journey. Six Steps to Managing Alzheimer's Disease and Dementia can help, addressing concerns such as: · Is the problem Alzheimer's, dementia, or something else? · How do you approach problems in dementia? · How do you manage problems with memory, language, and vision? · How do you cope with emotional and behavioral problems? · What are the best ways to manage troubles with sleep and incontinence? · Which medications can help? · Which medications can actually make things worse? · How do you build your care team? · Why is it important to care for yourself? · How do you sustain your relationship with your loved one? · How do you plan for the progression of dementia? · How do you plan for the end and beyond? Six Steps to Managing Alzheimer's Disease and Dementia is comprehensive yet written in an easy-to-read style, featuring clinical vignettes and character-based stories that provide real-life examples of how to successfully manage Alzheimer's disease and dementia.
“This book holds the story of a monumental research effort… It provides a moving, thoughtful, understanding of what “neighbourhood” means and is a beacon for efforts aimed at improving the quality of life of all involved.” Steven R. Sabat, Professor Emeritus of Psychology, Georgetown University, Washington D.C., USA “It is indicative reading for educators, researchers, clinicians and policy makers nationally and internationally. By grounding the underpinning research in the lived experience of people with dementia, the book’s appeal extends to voluntary and community groups. Reading it is a must!” Assumpta Ryan, Professor of Ageing and Health, Ulster University, UK “A remarkable contribution to the ‘Reconsidering Dementia’ series.” Bob Woods, Emeritus Professor, Bangor University, UK This book provides research based insights into the lived experience of dementia, aging in place and the use of participatory and creative social research approaches in the field of dementia studies. For the first time the key findings of one of the UKs largest funded social science research projects, the Neighbourhoods study, are assembled into one accessibly written blueprint for dementia care aiding better understanding of the place and position of those living with dementia in the home and neighbourhood context. Reconsidering Neighbourhoods and Living with Dementia highlights the importance of home for people living with dementia and that neighbourhoods are seen to be relational, virtual, technological, connected, lived, remembered, and imagined, and to exist within and across time. The book is organised under five key parts: •The Lived Neighbourhood •Neighbourhoods, Measurement and Technology •Neighbourhoods and Big Data •Personal Well-Being and Neighbourhood Programme Support •Bringing it Together and Future Directions This comprehensive book is appropriate to a wide range of readers and disciplines including those living with dementia, the related health and voluntary professions, family carers, practitioners, academics, and students undertaking a variety of courses aligned to gerontology, dementia studies and human geography. The Reconsidering Dementia Series is an interdisciplinary series published by Open University Press that covers contemporary issues to challenge and engage readers in thinking deeply about the topic. The dementia field has developed rapidly in its scope and practice over the past ten years and books in this series will unpack not only what this means for the student, academic and practitioner, but also for all those affected by dementia. Series Editors: Dr Keith Oliver and Professor Dawn Brooker MBE. John Keady is a mental health nurse who has been involved in dementia care for over 30 years. Since 2006, he has held a joint appointment between the University of Manchester and the Greater Manchester Mental Health NHS Foundation Trust. He was the Chief Investigator of the Neighbourhoods study.
