Meeting the Challenge of Caring for Persons Living with Dementia and Their Care Partners and Caregivers

Meeting the Challenge of Caring for Persons Living with Dementia and Their Care Partners and Caregivers

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  • Author: National Academies of Sciences Engineering and Medicine
  • Publisher:
  • ISBN: 9780309154291
  • Category :
  • Languages : en
  • Pages :


Families Caring for an Aging America

Families Caring for an Aging America

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  • Author: National Academies of Sciences, Engineering, and Medicine
  • Publisher: National Academies Press
  • ISBN: 0309448093
  • Category : Medical
  • Languages : en
  • Pages : 367

Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.


Dignity for Deeply Forgetful People

Dignity for Deeply Forgetful People

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  • Author: Stephen G. Post
  • Publisher: JHU Press
  • ISBN: 1421442493
  • Category : Health & Fitness
  • Languages : en
  • Pages : 289

"A new ethics guideline for caregivers of "deeply forgetful people" and a program on how to communicate and connect based on 30 years of community dialogues through Alzheimer's organizations across the globe"--


Reducing the Impact of Dementia in America

Reducing the Impact of Dementia in America

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  • Author: National Academies of Sciences Engineering and Medicine
  • Publisher:
  • ISBN: 9780309495035
  • Category :
  • Languages : en
  • Pages :

As the largest generation in U.S. history - the population born in the two decades immediately following World War II - enters the age of risk for cognitive impairment, growing numbers of people will experience dementia (including Alzheimer's disease and related dementias). By one estimate, nearly 14 million people in the United States will be living with dementia by 2060. Like other hardships, the experience of living with dementia can bring unexpected moments of intimacy, growth, and compassion, but these diseases also affect people's capacity to work and carry out other activities and alter their relationships with loved ones, friends, and coworkers. Those who live with and care for individuals experiencing these diseases face challenges that include physical and emotional stress, difficult changes and losses in their relationships with life partners, loss of income, and interrupted connections to other activities and friends. From a societal perspective, these diseases place substantial demands on communities and on the institutions and government entities that support people living with dementia and their families, including the health care system, the providers of direct care, and others. Nevertheless, research in the social and behavioral sciences points to possibilities for preventing or slowing the development of dementia and for substantially reducing its social and economic impacts. At the request of the National Institute on Aging of the U.S. Department of Health and Human Services, Reducing the Impact of Dementia in America assesses the contributions of research in the social and behavioral sciences and identifies a research agenda for the coming decade. This report offers a blueprint for the next decade of behavioral and social science research to reduce the negative impact of dementia for America's diverse population. Reducing the Impact of Dementia in America calls for research that addresses the causes and solutions for disparities in both developing dementia and receiving adequate treatment and support. It calls for research that sets goals meaningful not just for scientists but for people living with dementia and those who support them as well. By 2030, an estimated 8.5 million Americans will have Alzheimer's disease and many more will have other forms of dementia. Through identifying priorities social and behavioral science research and recommending ways in which they can be pursued in a coordinated fashion, Reducing the Impact of Dementia in America will help produce research that improves the lives of all those affected by dementia.


A Caregiver's Guide to Dementia

A Caregiver's Guide to Dementia

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  • Author: Janet Yagoda Shagam
  • Publisher: Rowman & Littlefield
  • ISBN: 1633886956
  • Category : Health & Fitness
  • Languages : en
  • Pages : 373

*New Edition with Updated dementia, dementia care, and resource information.* According to the Alzheimer’s Association, there are more than six million people living in the United States have Alzheimer's disease or some other form of dementia. Not reported in these statistics are the sixteen million family caregivers who, in total, contribute nineteen billion hours of unpaid care each year. This book addresses the needs and challenges faced by adult children and other family members who are scrambling to make sense of what is happening to themselves and the loved ones in their care. The author, an experienced medical and science writer known for her ability to clearly explain complex and emotionally sensitive topics, is also a former family caregiver herself. Using both personal narrative and well-researched, expert-verified content, she guides readers through the often-confusing and challenging world of dementia care. She carefully escorts caregivers through the basics of dementia as a brain disorder, its accompanying behaviors, the procedures used to diagnose and stage the disease, and the legal aspects of providing care for an adult who is no longer competent. She also covers topics not usually included in other books on dementia: family dynamics, caregiver burnout, elder abuse, incontinence, finances and paying for care, the challenges same-sex families face, and coping with the eventuality of death and estate management. Each chapter begins with a real-life vignette taken from the author's personal experience and concludes with "Frequently Asked Questions" and "Worksheets" sections. The FAQs tackle specific issues and situations that often make caregiving such a challenge. The worksheets are a tool to help readers organize, evaluate, and self-reflect. A glossary of terms, an appendix, and references for further reading give readers a command of the vocabulary clinicians use and access to valuable resources.


A Loving Approach to Dementia Care

A Loving Approach to Dementia Care

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  • Author: Laura Wayman
  • Publisher: JHU Press
  • ISBN: 1421440075
  • Category : Health & Fitness
  • Languages : en
  • Pages : 201

An encouraging and compassionate guide for dementia caregivers. Caring for someone with dementia means devotedly and patiently doing a hundred little things each day. But few care providers are trained to meet the challenges of dementia—despite the fact that millions of people will struggle with it as they grow older. In A Loving Approach to Dementia Care, Laura Wayman, who is known professionally as the Dementia Whisperer, offers practical, compassionate advice on overcoming caregiving obstacles and maintaining meaningful relationships with loved ones who have dementia and memory loss. In this thoroughly revised third edition, Wayman includes • answers to common caregiver questions, such as "What is dementia?" • a detailed explanation of how to cope with and care for a spouse with dementia symptoms, including advice about communication • a new chapter on caring for someone who has dementia along with other health problems • recommendations about how to handle challenging situations and behaviors • dementia-aware activities that work for both family caregivers and professional care staff • fresh caregiving insights that emphasize the importance of taking time to care for oneself Each chapter contains two sections—"Lessons Learned" and "Perceptions and Approaches"—which provide details about how readers can apply lessons from the stories Wayman tells to their own caregiving practice. Providing support for the numerous difficulties and disruptions that all caregivers face along the way, A Loving Approach to Dementia Care is an empathetic guide filled with respect, calm, and creativity. It will leave readers feeling empowered and inspired.


Caring for a Person with Alzheimer's Disease: Your Easy -to-Use- Guide from the National Institute on Aging (Revised January 2019)

Caring for a Person with Alzheimer's Disease: Your Easy -to-Use- Guide from the National Institute on Aging (Revised January 2019)

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  • Author: National Institute on Aging
  • Publisher: Lulu.com
  • ISBN: 0359588190
  • Category : Reference
  • Languages : en
  • Pages : 106

The guide tells you how to: Understand how AD changes a person Learn how to cope with these changes Help family and friends understand AD Plan for the future Make your home safe for the person with AD Manage everyday activities like eating, bathing, dressing, and grooming Take care of yourself Get help with caregiving Find out about helpful resources, such as websites, support groups, government agencies, and adult day care programs Choose a full-time care facility for the person with AD if needed Learn about common behavior and medical problems of people with AD and some medicines that may help Cope with late-stage AD


Caregiving Both Ways

Caregiving Both Ways

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  • Author: Molly Wisniewski
  • Publisher: Mango Media Inc.
  • ISBN: 1633539849
  • Category : Medical
  • Languages : en
  • Pages : 166

Overcome the Language Barrier of Dementia When a parent, spouse, sibling, or loved one is diagnosed with Alzheimer’s or another form of dementia, it can be difficult to know what to do. Your day can spiral into a never-ending series of tasks and attempts to communicate that leave you both frustrated. Instead of burning out, discover a new approach. When your loved one behaves differently than they used to, they’re just communicating in a new way. As caregivers, the most important thing we can do is learn that new language. Navigate the caregiving relationship: In Caregiving Both Ways, Molly Wisniewski offers essential advice for getting to know your loved one and yourself during this new phase of life. Learn to balance your priorities, avoid burning out, and honor self-care. Molly will teach you how to navigate the difficult moments with techniques she’s mastered from years of experience working with people with dementia. Prepare for each stage of care: Caregiving Both Ways is divided into two parts. First, learn how to care for your loved one with dementia and prioritize your new role as caregiver. Next, discover how to build a strong support system with help from professional caregivers and how to prepare for end-of-life care. In Caregiving Both Ways, you’ll find worksheets, exercises, and essential tips for smart, empathetic caregiving. You'll learn how to: • Use non-medical interventions to reduce anxiety • Prioritize and make time for your own care and mental health • Identify triggers that may cause confusion in your loved one • Handle difficult medical decisions • Provide support and validation through all stages of Alzheimer’s disease or dementia Readers who turned to Alzheimer’s books like The 36-Hour Day, When Reasoning No Longer Works, and Creating Moments of Joy Along the Alzheimer's Journey will love the compassionate approach of Caregiving Both Ways.


A Dignified Life

A Dignified Life

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  • Author: Virginia Bell
  • Publisher: Simon and Schuster
  • ISBN: 0757316662
  • Category : Health & Fitness
  • Languages : en
  • Pages : 336

More than 5 million Americans are currently living with Alzheimer's disease or a related form of dementia. By the year 2030, experts estimate that as many as 66 million people around the world will be faced with this life-altering disease. Unfortunately, these staggering statistics impact millions of caregivers, too. Compared with all types of caregivers, those who assist someone with dementia experience the highest levels of burnout, depression, poor health, and premature death. A Dignified Life, Revised and Expanded offers hope and help with a proven approach. Ten years ago, the first edition of A Dignified Life changed the way the caregiving community approached Alzheimer's disease by showing caregivers how to act as a Best Friend to the person, finding positive ways to interact even as mental abilities declined. Firmly grounded in the latest knowledge about the progression and treatment of dementia, this expanded edition offers a wealth of immediately usable tips and new problem-solving advice. It incorporates practical ideas for therapeutic activities—including the latest brain-fitness exercises—stimulate the brain while adding structure, meaning, and context to daily routines. With new stories and examples as well as an updated resources section, A Dignified Life, Revised and Expanded gives caregivers the support and advice they need to be successful and inspired in their demanding roles. While medical treatment of the disease hasn't changed in the past ten years, our understanding and awareness of treating people in a more caring way has changed substantially. With no cure on the immediate horizon, respectful care by effective and compassionate care partners is the only real "treatment" available to people with dementia. The Best Friends™ Approach is successful because it sustains people's connection to their world, their loved ones, and themselves. It's a universal program which has been embraced by professional and family caregivers throughout the United States, Europe, Asia, the Middle East, and South America. In its revised form, A Dignified Life offers caregivers an antidote to the burnout and frustration that often accompanies the role of caring for a person with Alzheimer's and dementia. Rather than struggling through a series of frustrations and failures, A Dignified Life shows the new generation care partners how to bring dignity, meaning, and peace of mind to the lives of both those who have Alzheimer's and dementia and those who care for them.


The A Leader's Manual for Demential Care-Partner Support Groups

The A Leader's Manual for Demential Care-Partner Support Groups

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  • Author: Alan Wolfelt
  • Publisher: Companion Press
  • ISBN: 1617222941
  • Category : Psychology
  • Languages : en
  • Pages : 195

If you're thinking about starting a support group for dementia care partners, this downloadable leader's manual is for you. The Dementia Care Partner's Workbook is a new resource from Companion Press that is both a support group participant's manual and self-study guide for care partners who have a loved one with Alzheimer's disease or another form of dementia. Its ten concise lessons not only walk you through the types, brain biology, and progressive symptoms of dementia but also offer practical tips for managing behaviors, coping with emotional issues, prioritizing self-care, and planning ahead—everything from diagnosis to end-of-life.If you are a medical, mental health, or other healthcare professional wanting to lead a support group for dementia care partners, or a layperson with a heart for those &“on the journey,&” A Leader's Manual for Dementia Care-Partner Support Groups is the comprehensive resource you need. The Manual provides general information about establishing and leading support groups, counseling skills for leaders and co-leaders, how to handle challenging group participants, step-by-step instructions on how to run each of the ten individual weekly meetings (including meeting-specific handouts), and lots of practical advice from co-authors Dr. Edward Shaw, physician, mental health counselor, and former dementia care partner, and Dr. Alan Wolfelt, world-renowned thanatologist, grief counselor, and author. The handouts and worksheets are number coded for easy cross-referencing with the content of The Dementia Care-Partner's Workbook.