Living with Spina Bifida

Living with Spina Bifida

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  • Author: Adrian Sandler, M.D.
  • Publisher: Univ of North Carolina Press
  • ISBN: 0807867861
  • Category : Health & Fitness
  • Languages : en
  • Pages : 295

It is the most common complex birth defect. Spina bifida affects approximately one out of every 1,000 children born in the United States. In this comprehensive guide, Dr. Adrian Sandler offers a wealth of useful information on the medical, developmental, and psychological aspects of this condition. Accurate, accessible, and up-to-date, Living with Spina Bifida is written especially for families and professionals who care for children, adolescents, and adults with spina bifida. This edition contains a new preface by the author, addressing recent developments in research and treatment, as well as an updated list of spina bifida associations.


Living with Spina Bifida

Living with Spina Bifida

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  • Author: Larry E. Appelmann
  • Publisher: Trafford Publishing
  • ISBN: 1553950690
  • Category : Biography & Autobiography
  • Languages : en
  • Pages : 68

Larry Appelmann talks about his experiences, including the past surgeries he has had. He also mentions his family and how important they are to him. Living with Spina Bifida: Speaking Out About My Disability contains 13 chapters, including a prologue and a bibliography, which you normally would not see in an autobiography but he included one because there were a lot of things related to his disability that he wanted to include in his autobiography. Click here to read a special message from the author.


Health Guide for Parents of Children Living with Spina Bifida

Health Guide for Parents of Children Living with Spina Bifida

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  • Author: Marlene Lutkenhoff
  • Publisher:
  • ISBN: 9780977273133
  • Category : Abnormalities, Human
  • Languages : en
  • Pages : 24

Timmy is enjoying a fun day of playing with his brother when he starts to feel ill. When Timmy's mother takes him to the doctor, they determine that his shunt is not working properly and he will need to have surgery to adjust it. After his successful surgery, and with the help of his parents, Timmy learns about his shunt and how it helps his body by acting just like a detour.


Living with Spina Bifida

Living with Spina Bifida

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  • Author: Gwynnyth Llewellyn
  • Publisher:
  • ISBN: 9780947205201
  • Category : Spina bifida
  • Languages : en
  • Pages : 117

What is spina bifida - Baby's first weeks - Toileting - Eating, drinking and personal care - Dressing - Getting out and about.


Living with Spina Bifida

Living with Spina Bifida

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  • Author: Gwynnyth Maple
  • Publisher:
  • ISBN:
  • Category : Children with disabilities
  • Languages : en
  • Pages :


Spina Bifida

Spina Bifida

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  • Author: Stephanie Watson
  • Publisher: The Rosen Publishing Group, Inc
  • ISBN: 1435848276
  • Category : Self-Help
  • Languages : en
  • Pages : 73

Spina bifida is the most common of a group of birth defects called neural tube defects. Spina bifida is a defect in the development of the vertebrae, leaving part of the spinal cord exposed. More than 70,000 people today live with spina bifida, according to the Spina Bifida Association. Scientists aren’t sure exactly why people get spina bifida, but they believe it has to do with a combination of genes and the environment. One of the best ways to prevent spina bifida is to take folic acid vitamins for at least one month before getting pregnant and during the pregnancy. In this book, students learn about the history of spina bifida, genetics and inheritance of traits, genetic mutations, who can have spina bifida and how it is treated, and the medical advances in research.


Brooke's Journey of Heart

Brooke's Journey of Heart

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  • Author: Beverly Charles
  • Publisher: AuthorHouse
  • ISBN: 1477232249
  • Category : Family & Relationships
  • Languages : en
  • Pages : 225

Brookes Journey of Heart is the story of a daughter who lives each day with the disabilities delivered with her at birth and the mother who gave birth to her. Beverly Charles asked her daughter, Brooke Klemme, if she would like to write her story of living with Spina Bifida. Brooke responded, "Yes! There are two sides to every story." Brooke and Beverly show us both sides of their story in the context of faith, family, and friends. In 1971, more than 6000 American children were born with Spina Bifida, but like most people, Beverly Charles knew nothing about this condition until she gave birth to her third and last child. In this touching memoir co-authored by Charles and her daughter Brooke Klemme, we learn first-hand not only what it means, but what it feels like - to raise a disabled child, to watch her suffer and triumph, and to be that child, who now as an adult, tells her side of the story. Most parents will never have to answer this question - should your new baby live? For Brooke's mother, there was only one answer, an answer that would involve multiple surgical procedures, interminable hospital stays, and an army of doctors and therapists - an answer that would change her and her family forever. This book is a spiritual memoir and a medical one. The authors make connections with Eastern and Western religious practices that have seen them through difficult and joyous times for over four decades. Their story transcends the personal to offer hope and help to other parents who have faced the same hard question and who, like Beverly and Brooke, answer "YES." As one reader said, I loved it. I laughed, cried, got mad, got sad, and now feel like a part of your family.


Born Twice

Born Twice

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  • Author: T. M. Berg
  • Publisher: Createspace Independent Publishing Platform
  • ISBN: 9781974480289
  • Category :
  • Languages : en
  • Pages : 624

Why is this happening? Why him? Why us? I can't count the number of times those words echoed through my mind over the course of the summer of 2017. There is no more powerless feeling for a parent than being forced to watch as their child battles for his health & well being. At my wife's 20 week ultrasound, we expected to learn the sex of our second munchkin, but instead our world was crumbled. Words like Spina Bifida, Arnold Chiari Malformation, Myelomeningocele & Hydrocephalus destroyed the excitement we held and replaced it with more uncertainty than we knew existed. The next weeks & months were a whirlwind as we met with specialists and flew across the country so that my wife could undergo fetal surgery to close the opening in my son's back, as well as give him the best chance for a life of worthwhile quality. We would remain there for 4 months, away from our oldest son & our home. Our little Loxley Poet had our hearts from the beginning, so it was never a question as to if we would do all in our power to give him the best chance. It was only a matter of how and when? The amazing people in our lives, our friends & family, made sure we had everything we needed, support in all shapes and sizes. Our journey being what it was, I decided that I could look at it as a burden or as an opportunity. Instead of asking ourselves 'why, ' perhaps we should have been asking ourselves, 'why not?' So, thats what we did. We would handle this and we would thrive, because thats what families do. That's how we survive. That's how we live. This book is for my little warrior, all of his twice born brothers & sisters, as well as their selfless families willing to sacrifice some so that their children may have it all.


Spina Bifida

Spina Bifida

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  • Author: M. Memet Özek
  • Publisher: Springer Science & Business Media
  • ISBN: 8847006511
  • Category : Medical
  • Languages : en
  • Pages : 523

The aim of this book to promote a multidisciplinary approach to Spina Bifida, providing the three main specialists categories involved – neurosurgeon, orthopedic surgeons, and urologists – with a concise reference that explains the main clinical problems to be faced in everyday clinical practice. The book also provides the busy specialist with an updated overview of surgical approaches.


Spina Bifida and Craniosynostosis

Spina Bifida and Craniosynostosis

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  • Author: Branislav Kolarovszki
  • Publisher: BoD – Books on Demand
  • ISBN: 1839629509
  • Category : Medical
  • Languages : en
  • Pages : 174

This book is a comprehensive overview of spina bifida and craniosynostosis with emphasis on new trends in the management of these diseases. Chapters on spina bifida cover such topics as the etiology and pathophysiology of caudal neural tube defects, the overall management of pediatric patients with spina bifida, surgical treatment, and urological and orthopedic care. The chapters on craniosynostosis present new technologies of surgical treatment, craniomaxillofacial corrective surgery, and telescoping techniques with multiple cranial osteotomies.