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Describes the causes and consequences of cerebral palsy, the most common lifelong disability in America, as well as offering coping strategies and resources for teens with cerebral palsy.
When a child has a health problem, parents want answers. But when a child has cerebral palsy, the answers don't come quickly. A diagnosis of this complex group of chronic conditions affecting movement and coordination is difficult to make and is typically delayed until the child is eighteen months old. Although the condition may be mild or severe, even general predictions about long-term prognosis seldom come before the child's second birthday. Written by a team of experts associated with the Cerebral Palsy Program at the Alfred I. duPont Hospital for Children, this authoritative resource provides parents and families with vital information that can help them cope with uncertainty. Thoroughly updated and revised to incorporate the latest medical advances, the second edition is a comprehensive guide to cerebral palsy. The book is organized into three parts. In the first, the authors describe specific patterns of involvement (hemiplegia, diplegia, quadriplegia), explain the medical and psychosocial implications of these conditions, and tell parents how to be effective advocates for their child. In the second part, the authors provide a wealth of practical advice about caregiving from nutrition to mobility. Part three features an extensive alphabetically arranged encyclopedia that defines and describes medical terms and diagnoses, medical and surgical procedures, and orthopedic and other assistive devices. Also included are lists of resources and recommended reading.
This reference provides coverage of the developmental, clinical, educational, family and intervention issues related to the care of children with disabilities. Readers will explore the beginning of life from conception to infancy, including factors in each stage that can cause disability; learn about child development, including physical development and preventable threats; go in-depth on specific developmental disabilities they'll likely encounter; and find guidelines on conducting interventions, managing outcomes, and working with families. preservice and in-service professionals. The book features case stories, a glossary of key terms and appendices about medications, resources and syndromes and inborn errors of metabolism.
An invaluable starting point for anyone encountering cerebral palsy for the first time, this book provides essential background information on causes, types and symptoms, as well as vital advice about the treatments, therapies and sources of support available. Practical tips on everyday considerations such as communication, diet and education will help parents achieve the best quality of life for their child. A final chapter explores options after compulsory education and how best to support a young person making the transition to independent adulthood. Using personal experience and case studies as sources of inspiration, as well as a comprehensive list of resources to signpost readers to further information, this positive handbook will help parents and professionals more fully understand cerebral palsy and the different options available to people with the condition.
Cerebral Palsy in Infancy is a thought-provoking book which introduces a new way of thinking on the development and use of interventions. Relevant to current practice, it advocates early, targeted activity that is focused on increasing muscle activation, training basic actions and minimizing (or preventing) mal-adaptive changes to muscle morphology and function. The authors present recent scientific findings in brain science, movement sciences (developmental biomechanics, motor control mechanisms, motor learning, exercise science) and muscle biology. This knowledge provides the rationale for active intervention, underpinning the need for an early referral to appropriate services. The book features methods for promoting relatively intensive physical activity in young infants without placing a burden on parents which include assistive technologies such as robotics, electronic bilateral limb trainers and baby treadmills. Cerebral Palsy in Infancy begins by specifying the guidelines for training and exercise, outlining the rationale for such intervention. It goes on to cover the fundamentals of neuromotor plasticity and the development and negative effects of limited motor activity on brain organization and corticospinal tract development. Neuromuscular adaptations to impairments and inactivity are discussed along with the General Movement assessment that can provide early diagnosis and prognosis, facilitating very early referral from paediatric specialists to training programs. The book ends with a section featuring various methods of training with the emphasis on preventing/minimizing muscle contracture, stimulating biomechanically critical muscle activity and joint movement. An ideal clinical reference for those working to improve the lives of infants suffering from cerebral palsy. CONTRIBUTORS: Adel Abdullah Alhusaini (Saudi Arabia); David I. Anderson (USA); Nicolas Bayle (France); Roslyn Boyd (Australia); Giovanni Cioni (Italy); Diane L. Damiano (USA); Janet Eyre (UK); Linda Fetters (USA); Mary Galea (Australia); Andrew M Gordon (USA); Martin Gough (UK); Richard L Lieber (USA); Jens Bo Nielsen (Denmark); Micah Perez (Australia); Caroline Teulier (France). "This book provides a comprehensive overview of the challenges of motor development and the consequent impact of poor motor function in later childhood for infants with cerebral palsy (CP)." Reviewed by: Oxford Brookes University on behalf of the British Journal of Occupational Therapy, Dec 2014 conceived and edited by Roberta Shepherd with contributions from internationally renowned expert clinicians and researchers discusses new research and new evidence-based treatment interventions shows how to organize very early and intensive physical activity in young infants to stimulate motor development and growth therapies include the specificity of training and exercise, with emphasis on promoting muscle activity and preventing contracture by active instead of passive stretching methods include new interactive technologies in enhancing home-based training sessions carried out by the infant's family extensive referencing in each chapter for further study chapters feature "Annotations" which illustrate scientific findings
This book is based on presentations and discussions of a group of world-renowned experts during a symposium "International Cerebral Palsy Function & Mobility Symposium: Improving Quality of Life for Individuals with Cerebral Palsy through Treatment of Gait Impairment" which was held in Banff, Canada, in December 2019. Clinicians and scientists are paired to discuss the current state of knowledge, working at the border of what we know and what we don't, to advance the care of those with gait impairment due to cerebral palsy. Using authors with different focus, points of view, and ways of thinking, to help establish a framework to guide research efforts for the next five years and to ensure that progress continues to be made to improve the quality of life for those with gait impairments. Disparate topics are unified by a common format of bulleted key points and objectives at the beginning of each chapter and research goals at the end to make the results more rapidly accessible. Focus on gait and mobility in a clear, well-structured format. Enhances debate and exploration of issues. Challenges long-held assumptions to explore the current state of research, testing, and treatment and help direct it meaningfully. The disparate topics are unified by a common format of bulleted key points and objectives at the beginning of each chapter and research goals at the end to make the results more rapidly accessible. Presents objective, but also expert opinion, on how future research could be best directed. Patient goals need more attention, outcomes have stagnated, the details of the underlying neurological impairments are still a mystery, and strong evidence for what we do is desperately needed.
