Dementia Together

Dementia Together

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  • Author: Pati Bielak-Smith
  • Publisher: PuddleDancer Press
  • ISBN: 1934336246
  • Category : Family & Relationships
  • Languages : en
  • Pages : 252

Dementia is an illness that causes no physical pain. But just ask anyone who cares about someone with Alzheimer's or another dementia if their heart isn't aching. The pain in dementia comes from feeling hopeless, alone, or disconnected from loved ones—but a broken relationship can be healed. This book is for family members and friends, for spouses, caregivers, and those who simply care. It outlines a path to a life with dementia that includes more life and less illness. With imagination, compassion, empathy, and quiet humor, the real-life stories in Dementia Together show you how to build a healthy dementia relationship. Because there are ways to communicate that result in greater capacity to receive as well as to provide both warm connection and practical collaboration. Living with dementia gives everyone an opportunity to grow their hearts bigger. This book shows you how.


Aging Together

Aging Together

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  • Author: Susan H. McFadden
  • Publisher:
  • ISBN:
  • Category : Dementia
  • Languages : en
  • Pages : 0

"Never in human history have there been so many people entering old age -- roughly one-third of whom will experience some form of neurodegeneration as they age. This seismic demographic shift will force us all to rethink how we live and deal with our aging population. Susan H. McFadden and John T. McFadden propose a radical reconstruction of our societal understanding of old age. Rather than categorize elders based on their respective cognitive consciousness, the McFaddens contend that the only humanistic, supportive, and realistic approach is to find new ways to honor and recognize the dignity, worth, and personhood of those journeying into dementia. Doing so, they argue, counters the common view of dementia as a personal tragedy shared only by close family members and replaces it with the understanding that we are all living with dementia as the baby boomers age, early screening becomes more common, and a cure remains elusive. The McFaddens' inclusive vision calls for social institutions, especially faith communities, to search out and build supportive, ongoing friendships that offer hospitality to all persons, regardless of cognitive status. Drawing on medicine, social science, philosophy, and religion to provide a broad perspective on aging, Aging Together offers a vision of relationships filled with love, joy, and hope in the face of a condition that all too often elicits anxiety, hopelessness, and despair"--Provided by publisher.


Caring for a Loved One with Dementia

Caring for a Loved One with Dementia

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  • Author: Marguerite Manteau-Rao
  • Publisher: New Harbinger Publications
  • ISBN: 1626251592
  • Category : Family & Relationships
  • Languages : en
  • Pages : 200

If you’re caring for a loved one with dementia, you know firsthand the challenge of providing care while maintaining your own well-being. Caring for a Loved One with Dementia offers a compassionate and effective mindfulness-based dementia care (MBDC) guide to help you reduce stress, stay balanced, and bring ease into your interactions with the person with dementia. In this book, you’ll learn how to approach caring with calm, centered presence; respond to your loved one with compassion; and maintain authentic communication, even in the absence of words. Most importantly, you’ll discover ways to manage the grief, anger, depression, and other emotions often associated with dementia care, so you can find strength and meaning in each moment you spend with your loved one.


Dementia Essentials

Dementia Essentials

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  • Author: Jan Hall
  • Publisher: Random House
  • ISBN: 1448175577
  • Category : Health & Fitness
  • Languages : en
  • Pages : 290

When a loved one has been diagnosed with dementia you might step into the new role of carer, helping your relative to remain safe, happy and as independent as possible. In this fully updated and revised edition, Dementia Essentials offers a realistic and reassuring guide to help you and the person affected navigate the complexities of dementia and Alzheimer’s, and face anything that these conditions might place your way. Written by real carers with first-hand experience, this book is now updated with the latest research coupled with essential advice, personal insights and helpful strategies, including: · Advice on medication and getting support from local health professionals · Ideas for encouraging independence, confidence and activity while reducing anxiety, aggression and confusion · Strategies for coping as a carer, helping you understand your emotions and feel more empowered · Guidance on how to prepare for the future, including revised legal and financial advice and tips on choosing a care home Positive and practical, Dementia Essentials will give you with everything you need to provide the best possible care for the person you are supporting.


Contented Dementia

Contented Dementia

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  • Author: Oliver James
  • Publisher: Random House
  • ISBN: 1407028871
  • Category : Family & Relationships
  • Languages : en
  • Pages : 306

Dementia is a little understood and currently incurable illness, but much can be done to maximise the quality of life for people with the condition. Contented Dementia - by clinical psychologist and bestselling author Oliver James - outlines a groundbreaking and practical method for managing dementia that will allow both sufferer and carer to maintain the highest possible quality of life, throughout every stage of the illness. A person with dementia will experience random and increasingly frequent memory blanks relating to recent events. Feelings, however, remain intact, as do memories of past events and both can be used in a special way to substitute for more recent information that has been lost. The SPECAL method (Specialized Early Care for Alzheimer's) outlined in this book works by creating links between past memories and the routine activities of daily life in the present. Drawing on real-life examples and user-friendly tried-and-tested methods, Contented Dementia provides essential information and guidance for carers, relatives and professionals.


Dancing with Dementia

Dancing with Dementia

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  • Author: Christine Bryden
  • Publisher: Jessica Kingsley Publishers
  • ISBN: 9781843103325
  • Category : Health & Fitness
  • Languages : en
  • Pages : 204

Christine Bryden was a top civil servant and single mother of three children when she was diagnosed with dementia at the age of 46. Dancing with Dementia is a vivid account of her experiences of living with dementia, exploring the effects of memory problems, loss of independence, difficulties in communication and the exhaustion of coping with simple tasks. She describes how, with the support of her husband Paul, she continues to lead an active life nevertheless, and explains how professionals and carers can help. This book is a thoughtful exploration of how dementia challenges our ideas of personal identity and of the process of self-discovery it can bring about.


The Last Ocean

The Last Ocean

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  • Author: Nicci Gerrard
  • Publisher: Penguin
  • ISBN: 0525521984
  • Category : Biography & Autobiography
  • Languages : en
  • Pages : 274

From the award-winning journalist and author, a lyrical, raw and humane investigation of dementia that explores both the journeys of the people who live with the condition and those of their loved ones After a diagnosis of dementia, Nicci Gerrard’s father, John, continued to live life on his own terms, alongside the disease. But when an isolating hospital stay precipitated a dramatic turn for the worse, Gerrard, an award-winning journalist and author, recognized that it was not just the disease, but misguided protocol and harmful practices that cause such pain at the end of life. Gerrard was inspired to seek a better course for all who suffer because of the disease. The Last Ocean is Gerrard’s investigation into what dementia does to both the person who lives with the condition and to their caregivers. Dementia is now one of the leading causes of death in the West, and this necessary book will offer both comfort and a map to those walking through it. While she begins with her father’s long slip into forgetting, Gerrard expands to examine dementia writ large. Gerrard gives raw but literary shape both to the unimaginable loss of one’s own faculties, as well as to the pain of their loved ones. Her lens is unflinching, but Gerrard honors her subjects and finds the beauty and the humanity in their seemingly diminished states. In so doing, she examines the philosophy of what it means to have a self, as well as how we can offer dignity and peace to those who suffer with this terrible disease. Not only will it aid those walking with dementia patients, The Last Ocean will prompt all of us to think on the nature of a life well lived.


HCI and Design in the Context of Dementia

HCI and Design in the Context of Dementia

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  • Author: Rens Brankaert
  • Publisher: Springer Nature
  • ISBN: 303032835X
  • Category : Computers
  • Languages : en
  • Pages : 348

Old age is currently the greatest risk factor for developing dementia. Since older people make up a larger portion of the population than ever before, the resulting increase in the incidence of dementia presents a major challenge for society. Dementia is complex and multifaceted and impacts not only the person with the diagnosis but also those caring for them and society as a whole. Human-Computer Interaction (HCI) design and development are pivotal in enabling people with dementia to live well and be supported in the communities around them. HCI is increasingly addressing the need for inclusivity and accessibility in the design and development of new technologies, interfaces, systems, services, and tools. Using interdisciplinary approaches HCI engages with the complexities and ‘messiness’ of real-world design spaces to provide novel perspectives and new ways of addressing the challenge of dementia and multi-stakeholder needs. HCI and Design in the Context of Dementia brings together the work of international experts, designers and researchers working across disciplines. It provides methodologies, methods and frameworks, approaches to participatory engagement and case studies showing how technology can impact the lives of people living with dementia and those around them. It includes examples of how to conduct dementia research and design in-context in the field of HCI, ethically and effectively and how these issues transcend the design space of dementia to inform HCI design and technology development more broadly. The book is valuable for and aimed at designers, researchers, scholars and caregivers that work with vulnerable groups like people with dementia, and those directly impacted.


Reclaiming Joy Together

Reclaiming Joy Together

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  • Author: Lawson Bryan
  • Publisher:
  • ISBN:
  • Category :
  • Languages : en
  • Pages : 238

There is a friendship revolution happening in dementia care across the country. Since the birth of the Respite Ministry in 2012 at a southern church in Montgomery, Alabama, their outreach to friends and neighbors living with dementia has been innovative and all welcoming. Originally a faith-born ministry, Respite's place in the community and now the world has been an open-arms embrace--a great welcoming to friends, neighbors, and strangers of any ethnicity or faith who are living with dementia of any variety. Respite is mainly staffed with volunteers. Director Daphne Johnston calls these volunteers the forerunners in dementia care the force that drives this friendship revolution. "In the Respite care environment everyone is a volunteer. Everyone needs help. Everyone is needy because he or she needs to either receive help or give help." Daphne Johnston knows that "Volunteers make a Respite community thrive in any locale. It is an adaptable model that can be tailored to your community and fit your resources and gifts. This book Reclaiming Joy Together is the current summary of what we at Respite have learned, become, and it explains our vision for the future. The model is now replicated in 17 other Respite programs with modifications for their own local neighborhood. Different names are chosen by each community, but the core values of volunteer Respite are all guided by one driving purpose: to come alongside others who need the help of neighbors and new friends." Daphne Johnston explains how this friendship revolution began: "My boss at the time and mentor Bishop Lawson Bryan asked me to create a business plan to establish a faith community at our church. He felt that people who have been worshipping and fellowshipping in their home church shouldn't have to be excluded when they developed any illness or even dementia. The vision originated with and was inspired by Lawson Bryan, and with his guidance and encouragement, I just started asking people to help. They got on board in a big way." As a result of Respite's individual story, the global narrative of dementia care began to change. "When people first hear the diagnosis of dementia, Alzheimer's or Parkinson's, they brace for what they assume will become an overwhelming tsunami--a flood of worry and work that will overtake and erode all normalcy and subsume a quality of life that can never be had again. That doesn't have to be true," Daphne asserts. "The diagnosis of dementia is like other kinds of diagnoses that something is now wrong that needs to be tended. We simply need to provide a kind of care tailored to the needs of people with memory or reasoning impairment, which vary significantly depending upon the person." About Daphne Johnston: After serving in long-term care administration for 15 years, Daphne Johnston accepted the challenge in 2012 at the First United Methodist Church to develop the Respite Ministry for families affected by Alzheimer's in the tri-county area of Montgomery, Alabama. Since then, Daphne has helped to plant the volunteer-driven model in 17 different program sites in AL, FL, and GA. Her mission is to help individuals with dementia and their family members find purpose, dignity, and opportunity to serve their community while living with new life challenges. Daphne and her husband Frank make their home in Montgomery, Alabama and have two children: Bo and Kathleen. She is an avid reader and tennis player.


Dear Alzheimer's

Dear Alzheimer's

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  • Author: Keith Oliver
  • Publisher: Jessica Kingsley Publishers
  • ISBN: 1784508985
  • Category : Health & Fitness
  • Languages : en
  • Pages : 224

Keith Oliver was diagnosed with Alzheimer's in 2010, and has since become a leading activist for dementia care, and an international speaker. Telling his story through a diary format, this book gives an unparalleled insight into what day-to-day life with dementia is like, and how he continued to live a full life after diagnosis.