Living with Spina Bifida

Living with Spina Bifida

PDF Living with Spina Bifida Download

  • Author: Adrian Sandler, M.D.
  • Publisher: Univ of North Carolina Press
  • ISBN: 0807867861
  • Category : Health & Fitness
  • Languages : en
  • Pages : 295

It is the most common complex birth defect. Spina bifida affects approximately one out of every 1,000 children born in the United States. In this comprehensive guide, Dr. Adrian Sandler offers a wealth of useful information on the medical, developmental, and psychological aspects of this condition. Accurate, accessible, and up-to-date, Living with Spina Bifida is written especially for families and professionals who care for children, adolescents, and adults with spina bifida. This edition contains a new preface by the author, addressing recent developments in research and treatment, as well as an updated list of spina bifida associations.


Living with Spina Bifida

Living with Spina Bifida

PDF Living with Spina Bifida Download

  • Author: Larry E. Appelmann
  • Publisher: Trafford Publishing
  • ISBN: 1553950690
  • Category : Biography & Autobiography
  • Languages : en
  • Pages : 68

Larry Appelmann talks about his experiences, including the past surgeries he has had. He also mentions his family and how important they are to him. Living with Spina Bifida: Speaking Out About My Disability contains 13 chapters, including a prologue and a bibliography, which you normally would not see in an autobiography but he included one because there were a lot of things related to his disability that he wanted to include in his autobiography. Click here to read a special message from the author.


The Truth about Spina Bifida

The Truth about Spina Bifida

PDF The Truth about Spina Bifida Download

  • Author: Bonnie Melendez
  • Publisher:
  • ISBN:
  • Category :
  • Languages : en
  • Pages : 141

Spina bifida is a birth defect that affects the spine primarily. During the first month of pregnancy, a special set of cells called the "neural tube" forms. Spina bifida is a spine condition that is usually noticeable at birth. It's a kind of neural tube defect (NTD). Spina bifida can occur anywhere along the spine if the neural tube fails to close completely. Dr. Bonnie Melendez's comprehensive guide provides a wealth of useful information on the medical, developmental, and psychological aspects of this condition. This book is written specifically for families and professionals who care for children, adolescents, and adults with spina bifida. It is accurate, accessible, and up to date. This edition includes an updated list of spina bifida associations, as well as a new preface by the author addressing recent developments in research and treatment. In this book you are going to learn the following: Interesting Tips about the Spina Bifida: What is spina bifida? Spina bifida causes Spina bifida types Spina bifida's history Who is at risk? Preventing defects in neural tubes, Spina bifida test Folic acid, Neurosurgery Toddlers and preschoolers with spina bifida Infants with spina bifida Children of school age Guideline on sexual health and education Guideline for mental health Is spina bifida associated with any disorders or conditions? Rehabilitation of spina bifida children and young adults What are neural tube defects? Hydrocephalus Shunt system complications How to avoid a not uncommon congenital defect known as spina bifida during pregnancy And many more... Click Buy Now to Get Your Copy


The Fight for My Nephew’s Life with Spina Bifida

The Fight for My Nephew’s Life with Spina Bifida

PDF The Fight for My Nephew’s Life with Spina Bifida Download

  • Author: Susan A. Akok MPH
  • Publisher: AuthorHouse
  • ISBN: 1665515422
  • Category : Self-Help
  • Languages : en
  • Pages : 120

When my nephew was diagnosed with Spina Bifida at birth in Nairobi, Kenya, his loving parents knew little to almost nothing about this mysterious ailment. This lack of the underlying condition made it difficult for them or other close family members to seek specialized care, rendering any early interventions out of question and dimmed his future treatments. Innocently, his parents assumed that the condition that he has would disappear or get treated with passing months or even years. Things did not improve and that led them to inform other family members, including myself, their beloved sister. Upon hearing that the boy’s health was not progressing as expected, I decided to visit Nairobi and made firsthand observations. I was convinced beyond doubt that moving Little Deng to the US would be best. The prospect that he could have face severe challenges, even death, was both tormenting and motivating. Thanks God that him and his father both flew into Salt Lake City, Utah, on December 22, 2014. His loving family, including grandmother, uncles and aunty were always ready to see his treatment through, with zeal and passion. Treatments meant conducting catheterization by inserting a small tube into his private area four times, every four hours per day, administrating medication twice per day for bladder control infection, watching for hydrocephalus - shunt malfunctions almost every day because it could lead to death if not properly caught on time, checking braces on his feet for any skin redness, adjusting walker and wheelchair, even carrying him around when he struggled, countless Emergency Room (RM) visits, long hours every six months visit to Spina Bifida Clinic, attending constant Physical and Occupation therapist twice per week, and performing bowl movement program every day, every evening. Little Deng is a blessing to me and our family. As a first-time caregiver, when Little Deng is out for school and other activities, I would be stressed and depressed throughout the day given his condition and how he may do outside there. He is a stronger boy, considering what he faces. While facing all the challenges, Little Deng is a fighter. He survived spina bifida without any support and hearing from his biological mother for the last six years following his treatments in Utah. This has led him to travel back to Nairobi, Kenya, for family visit and met with his family, especially his two siblings who were born after he has been relocated to Utah. He is also a determined boy and who dreams big against all odds. Although Little Deng knew he might not physically walk, he has a big dream of becoming an NBA star and be the next Donavan Mitchell. This passion brought him to the Utah Jazz Arena where he met face-to-face with Donavan. Received his shoes and got interviewed on NBA All Star. He was enrolled in a Utah Jazz Jr. Wheelchair basketball and summer adaptive program at the Recreation Adoptive Center located in Midvale, Utah. The journey has just begun but fears and worries remind the same. All the same, Little Deng was and remains blessing to our family here in Salt Lake City and in Africa where his biological parents reside.


Living with Spina Bifida

Living with Spina Bifida

PDF Living with Spina Bifida Download

  • Author: Gwynnyth Llewellyn
  • Publisher:
  • ISBN: 9780947205201
  • Category : Spina bifida
  • Languages : en
  • Pages : 117

What is spina bifida - Baby's first weeks - Toileting - Eating, drinking and personal care - Dressing - Getting out and about.


Spina Bifida

Spina Bifida

PDF Spina Bifida Download

  • Author: Stephanie Watson
  • Publisher: The Rosen Publishing Group, Inc
  • ISBN: 140421853X
  • Category : Self-Help
  • Languages : en
  • Pages : 66

Describes the genetic disease spina bifida, including its history, how it is treated, and current medical research towards a cure.


Living with Spina Bifida

Living with Spina Bifida

PDF Living with Spina Bifida Download

  • Author: Gwynnyth Maple
  • Publisher:
  • ISBN:
  • Category : Children with disabilities
  • Languages : en
  • Pages :


Cody's Story

Cody's Story

PDF Cody's Story Download

  • Author: Janny Dicken
  • Publisher:
  • ISBN: 9781413741933
  • Category : People with disabilities
  • Languages : en
  • Pages : 0

December 11, 1984, we welcomed a new life into the world when Cody, our bundle of love, was born. But the smiles quickly turned to tears when we received the shocking news of his birth defect: spina bifida. Our struggle against this disease had begun. There were times when the odds were against Cody. Many times we feared he would not live. But it seemed that Cody inherited strength from his grandfathers, who were both remarkable men. This is why we followed the important advice given to us by a very special lady, who told us to "Live one day at a time."


Senate Hearings Before the Committee on Appropriations

Senate Hearings Before the Committee on Appropriations

PDF Senate Hearings Before the Committee on Appropriations Download

  • Author:
  • Publisher: DIANE Publishing
  • ISBN: 1422332535
  • Category :
  • Languages : en
  • Pages : 698


Health Guide for Parents of Children Living with Spina Bifida

Health Guide for Parents of Children Living with Spina Bifida

PDF Health Guide for Parents of Children Living with Spina Bifida Download

  • Author: Marlene Lutkenhoff
  • Publisher:
  • ISBN: 9780977273133
  • Category : Abnormalities, Human
  • Languages : en
  • Pages : 24

Timmy is enjoying a fun day of playing with his brother when he starts to feel ill. When Timmy's mother takes him to the doctor, they determine that his shunt is not working properly and he will need to have surgery to adjust it. After his successful surgery, and with the help of his parents, Timmy learns about his shunt and how it helps his body by acting just like a detour.