Informed Consent and Health Literacy

2015-03-04
Informed Consent and Health Literacy

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  • Author: Institute of Medicine
  • Publisher: National Academies Press
  • ISBN: 0309317304
  • Category : Medical
  • Languages : en
  • Pages : 192

Informed consent - the process of communication between a patient or research subject and a physician or researcher that results in the explicit agreement to undergo a specific medical intervention - is an ethical concept based on the principle that all patients and research subjects should understand and agree to the potential consequences of the clinical care they receive. Regulations that govern the attainment of informed consent for treatment and research are crucial to ensuring that medical care and research are conducted in an ethical manner and with the utmost respect for individual preferences and dignity. These regulations, however, often require - or are perceived to require - that informed consent documents and related materials contain language that is beyond the comprehension level of most patients and study participants. To explore what actions can be taken to help close the gap between what is required in the informed consent process and communicating it in a health-literate and meaningful manner to individuals, the Institute of Medicine's Roundtable on Health Literacy convened a one-day public workshop featuring presentations and discussions that examine the implications of health literacy for informed consent for both research involving human subjects and treatment of patients. Topics covered in this workshop included an overview of the ethical imperative to gain informed consent from patients and research participants, a review of the current state and best practices for informed consent in research and treatment, the connection between poor informed consent processes and minority underrepresentation in research, new approaches to informed consent that reflect principles of health literacy, and the future of informed consent in the treatment and research settings. Informed Consent and Health Literacy is the summary of the presentations and discussion of the workshop.

Health Literacy in Clinical Research

2020-06-28
Health Literacy in Clinical Research

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  • Author: National Academies of Sciences, Engineering, and Medicine
  • Publisher: National Academies Press
  • ISBN: 0309499690
  • Category : Medical
  • Languages : en
  • Pages : 121

Because of the individualized nature of drug and therapeutic treatments, clinical trials require participants who represent the diversity of the patient base. If early trials do not have a broad patient base, it can be difficult to know who may or may not benefit from or respond to a treatment later. In addition to diversity in recruitment, informed consent during participation is also crucial. If participants do not fully understand what they are signing up for, they may become confused, mistrustful, or drop out of a trial altogether, confusing investigators and possibly affecting the generalizability of a study. To explore the incorporation of health literacy practices into clinical trials, the Roundtable on Health Literacy convened a workshop titled Clinical Trials: Practice and Impact on April 11, 2019, in Washington, DC. The workshop presentations and discussion centered around issues related to the challenges or barriers for diverse populations' participation in clinical trials, best practices for clinical trial sites and researchers incorporating health literacy practices, and effective health literacy strategies for clear communication with participants. This publication summarizes the presentation and discussion of the workshop.

Health Literacy

2004-07-29
Health Literacy

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  • Author: Institute of Medicine
  • Publisher: National Academies Press
  • ISBN: 0309283329
  • Category : Medical
  • Languages : en
  • Pages : 367

To maintain their own health and the health of their families and communities, consumers rely heavily on the health information that is available to them. This information is at the core of the partnerships that patients and their families forge with today's complex modern health systems. This information may be provided in a variety of forms â€" ranging from a discussion between a patient and a health care provider to a health promotion advertisement, a consent form, or one of many other forms of health communication common in our society. Yet millions of Americans cannot understand or act upon this information. To address this problem, the field of health literacy brings together research and practice from diverse fields including education, health services, and social and cultural sciences, and the many organizations whose actions can improve or impede health literacy. Health Literacy: Prescription to End Confusion examines the body of knowledge that applies to the field of health literacy, and recommends actions to promote a health literate society. By examining the extent of limited health literacy and the ways to improve it, we can improve the health of individuals and populations.

Health Literacy in Nursing

2014-08-18
Health Literacy in Nursing

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  • Author: Terri Ann Parnell, MA, DNP, RN
  • Publisher: Springer Publishing Company
  • ISBN: 0826161731
  • Category : Medical
  • Languages : en
  • Pages : 320

"Dr. Parnell has captured the essence of health literacy and cultural competence, not only for nurses, but also applicable to all care providers and community workers. [and] provides us with a road map to enhance our success through health literacy and cultural competence. This is a must read for all health professionals." -Richard H. Carmona, MD, MPH, FACS (From the Foreword) 17th Surgeon General of the United States (2002-2006) Distinguished Professor, University of Arizona Promoting the health literacy of patients across all settings is an essential component of prevention, wellness, and effective medical treatment. This health literacy textbook provides an overview of health literacy, discusses the magnitude of the issue, and explains implications of low health literacy. It details strategies to enhance effective communication between patients and nursing practitioners. Through case-based examples, this textbook and clinical guide assists nurses in developing the requisite skills needed to communicate effectively so that patients can truly make informed health decisions and enhance health outcomes. Health Literacy in Nursing promotes verbal and written communication strategies that nurses can use to effectively meet the individualized needs of an increasingly diverse patient population in an effort to enhance patientñprovider communication across the entire continuum of care. It provides strategies for creating culturally appropriate written materials in plain language that patients can read and follow when they arrive home. Nursing professionals can build upon the basic tools offered in the text throughout their career to stay abreast of methods to effectively communicate and educate a culturally and linguistically diverse demographic. Additionally, the material can easily be incorporated into course content regarding ìunique populationsî (pediatrics, older adults, research participants, and those managing mental health and end-of-life care decisions) for whom health literacy is often overlooked. The book will be valuable to undergraduate and graduate nursing students studying to meet advanced nurse practice competencies and is an essential resource for practicing nurses who must stay abreast of evolving standards and regulations related to the provision of safe and effective patient and family-centered care. Key Features: Provides a solid foundation for developing skills that foster health literacy among all patients and practitioners Assists in meeting the regulatory requirements for providing culturally and linguistically appropriate patient education Includes guidelines for improving health literacy according to increasingly evolving regulatory standards Includes case-based examples to illustrate the purpose and effectiveness of enhancing patient and provider health literacy skills Addresses both oral and written communication strategies

Health Literacy

2004-06-29
Health Literacy

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  • Author: Institute of Medicine
  • Publisher: National Academies Press
  • ISBN: 0309133319
  • Category : Medical
  • Languages : en
  • Pages : 366

To maintain their own health and the health of their families and communities, consumers rely heavily on the health information that is available to them. This information is at the core of the partnerships that patients and their families forge with today's complex modern health systems. This information may be provided in a variety of forms â€" ranging from a discussion between a patient and a health care provider to a health promotion advertisement, a consent form, or one of many other forms of health communication common in our society. Yet millions of Americans cannot understand or act upon this information. To address this problem, the field of health literacy brings together research and practice from diverse fields including education, health services, and social and cultural sciences, and the many organizations whose actions can improve or impede health literacy. Health Literacy: Prescription to End Confusion examines the body of knowledge that applies to the field of health literacy, and recommends actions to promote a health literate society. By examining the extent of limited health literacy and the ways to improve it, we can improve the health of individuals and populations.

Optimizing Health Literacy for Improved Clinical Practices

2018-06-15
Optimizing Health Literacy for Improved Clinical Practices

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  • Author: Papalois, Vassilios E.
  • Publisher: IGI Global
  • ISBN: 152254075X
  • Category : Medical
  • Languages : en
  • Pages : 338

Scientific evidence from different countries around the globe shows that those with low or inadequate health-related knowledge and skills include all ages, social, and economic backgrounds. The consequences of this inadequacy simultaneously affect individuals, healthcare systems, and society in many ways, such as healthcare quality and cost. Research on health literacy can provide insight on how to improve the communication of health issues, raise awareness, and promote the lifelong learning of patients and healthcare professionals. Optimizing Health Literacy for Improved Clinical Practices examines the latest advances in providing and helping patients and medical professionals to understand basic health information and the services that are most appropriate. Featuring coverage on a broad range of topics such as patient engagement, mobile health, and health communication, this book is geared towards medical professionals, hospital adminstrators, healthcare providers, academicians, and researchers in the field.

Health Literacy

2017-10-18
Health Literacy

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  • Author: R.A. Logan
  • Publisher: IOS Press
  • ISBN: 161499790X
  • Category : Medical
  • Languages : en
  • Pages : 496

While health literacy is a relatively new multidisciplinary field, it is vital to the successful engagement with and communication of health with patients, caregivers, and the public. This book ‘New Directions in Health Literacy Research, Theory, and Practice’ provides an introduction to health literacy research and practice and highlights similar scholarship in related disciplines. The book is organized as follows: the first chapter explains the still-evolving definition of health literacy; the next three chapters discuss developments and new directions in health literacy research, then a further two chapters are devoted to developments and new directions in health literacy theory. Two chapters explore health literacy interventions for vulnerable populations; four chapters cover health literacy leadership efforts; six chapters describe developments and new directions in disciplines that are similar to health literacy; and six chapters portray diverse health literacy practices. A preface from Richard Carmona M.D., the former U.S. Surgeon General, is included in the book. Although the book is intended primarily for health literacy researchers, practitioners and students, the diverse topics and approaches covered will be of interest to all healthcare and public health researchers, practitioners, and students, as well as scholars in related fields, such as health communication, science communication, consumer health informatics, library science, health disparities, and mass communication. As Dr. Carmona concludes in his preface: ‘This is essential reading for all health practitioners.’

Health Literacy in Clinical Practice and Public Health

2020-06-23
Health Literacy in Clinical Practice and Public Health

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  • Author: R.A. Logan
  • Publisher: IOS Press
  • ISBN: 1643680757
  • Category : Medical
  • Languages : en
  • Pages : 616

“Health literacy is the ultimate global currency of health and well-being. Without health literacy, medicine fails, public health fails, and people pay the cost for these failures with their lives. As this book goes to press, the world is confronted by the COVID-19 pandemic. Improving health literacy becomes increasingly important if we are to successfully confront the challenges that stress our systems of medicine and public health like never before.” (Richard H. Carmona, M.D., M.P.H., FACS, former Surgeon General of the United States, in his foreword to this book.) Two years ago, HTI published the book Health Literacy: New Directions in Research, Theory and Practice. Together with that earlier volume, this book: Health Literacy in Clinical Practice and Public Health: New Initiatives and Lessons Learned at the Intersection with other Disciplines, strives to enumerate and expand our understanding of the multidisciplinary connections which underpin the field of health literacy. The book’s balance between research and practice is a response to the feedback the editors received about the previous publication, which focused more on HL theory and research. With reports of specific health literacy research initiatives and interventions, particularly in clinical practice and public health, the book covers contemporary health literacy research and practice and is divided into three sections. Section one explores health literacy’s capacity to foster progress in clinical practice and public health; section two provides insights into health literacy initiatives and lessons learned from diverse healthcare stakeholders; and section three examines health literacy’s similarities with – and differences from – related health research disciplines. The book sets the practice and research of health literacy on an evidence-based, thoughtful, effective, efficient, and applied course. As Dr Richard Carmona says in his foreword: “It is enthusiastically recommended for all health and medical practitioners and researchers.”

Health Literacy in Nursing

2014-08-18
Health Literacy in Nursing

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  • Author: Terri Ann Parnell
  • Publisher: Springer Publishing Company
  • ISBN: 0826161723
  • Category : Medical
  • Languages : en
  • Pages : 322

Promotes verbal and written communication strategies that nurses can use to effectively meet the individualized needs of an increasingly diverse patient population in an effort to enhance patient-provider communication across the entire continuum of care.

Understanding Health Literacy

2005-01-01
Understanding Health Literacy

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  • Author: Joanne G. Schwartzberg
  • Publisher: Amer Medical Assn
  • ISBN: 1579476309
  • Category : Health & Fitness
  • Languages : en
  • Pages : 253

rganized into four distinct sections, this book offers findings and raises questions to lead to progressive communication and investigation around the issue of health literacy in the context of the individual, the community, and patient-physician interaction.